Last updated on Jun 21st, 2021 at 12:26 pm
Tiny Teddy Wood was born on 23 November last year in the UK. The little fighter, however, will most likely spend his life on a ventilator, and will never be able to smile…
According to Teddy’s dad, Carl Wood, 32, “Teddy was diagnosed with Moebius syndrome.”
This means that his face muscles are paralysed and he struggles to breathe. After he was born by caesarean section, he underwent an emergency tracheotomy to help him breathe.
Teddy was also born with clubbed feet.
While the parents of any newborn have some major adjustments to make, Carl and his partner, Amber Nuttall never knew what awaited them.
Doctors did predict that Teddy would have difficulties when they did a scan during Amber’s pregnancy and found that he had a lot of water on his neck area. But it was only after extensive testing after Teddy was born that his parents were given a final diagnosis.
The very rare Moebius syndrome only affects a few hundred babies every year. According to the Genetic and Rare Diseases Information Center (GARD), “There is no cure for Moebius syndrome, but proper care and treatment give many individuals a normal life expectancy.”
Teddy, will according to doctors, always rely on a ventilator to help him breathe
For now, his parents are caring for him in the ICU ward at St Mary’s hospital, in Manchester. His parents post regular updates on their Facebook page set up to raise awareness of Moebius Syndrome. They are documenting daily life with Teddy and how they are managing his needs.
The hospital where Teddy is being treated is far away from his parent’s home in Blackpool, and they are planning to move as soon as possible. They are currently living in the Ronald McDonald Charity House in Manchester. The charity provides free ‘home away from home’ accommodation for families with children in hospital.
“With us knowing we have a very long stay ahead of us, we wanted to do something on Teddy’s behalf to raise money for this amazing charity,” said Carl who started a fundraiser for the organisation. “Please donate, it’s for an amazing cause, we have no idea what we would’ve done if it wasn’t for this amazing charity.”